Showing posts with label fibromyalgia. Show all posts
Showing posts with label fibromyalgia. Show all posts

Friday, August 12, 2011

A Cry for Help in the Darkness

Anger, resentment, discontent, desire, scarcity: these feelings fill my mind and my heart far more than any positive emotions. I tried very hard to develop more positivity in my thoughts and was doing pretty well, I thought. 

Slowly, stealthily, the positive thoughts and constructs leaked out of my mind and the dark, negative thoughts slid in. I didn't even notice, the dark ones feel so familiar. I feel consumed by the unfairness of life, grief, and loss. There's a positivity-sized hole in my mind: how do I stop it so I can keep my mind balanced and positive? After all, a friend spent an entire week writing about positivity in response to my desire for validation for my less-than-positive reality.

My mind is not a happy place to reside in. I cruise my usual blogs, but comment seldom because the useful- and/or positive-comment area of my brain is empty. All around me, fairies are falling to the ground and kittens are crying. I can feel my hair and my clothing turning black. What's the music Emo kids listen to these days?

When my mind is filled with sadness and despair, my body hurts. One of the joys of fibro, but it's also a side-effect of depression. My sleep is affected and pretty much everything sucks, thus completing the feedback loop that says the Universe is a dark and dreadful place.

It's like a prison. I want out.

It seems I am always saying — and asking for — help. This case falls under a request for help doing or learning to do something. I want a coach to help me regain my positive frame of mind, my reality-tinged optimism of former days. A coach who is sensitive to what I've gone through, the validation I need, and who won't go all perky and chipper on me. But I expect that, as usual, I will be left to do this all alone. Again. I honestly think this makes the process go much more slowly, leaving me depressed and and full of darkness for much longer. I can't see how this helps me. But then, it's not the Universe's place to be helpful or play fair. The Universe is just what it is. 

But maybe the force and energy that is Life will help me out a little. Something, someone, please give me some help here.

Thursday, August 4, 2011

Sometimes

Ya know, sometimes it's just not possible to be positive. And sometimes I want to be negative, or at least not-positive. This has been an ungodly shitty year, the latest in a life punctuated by unexpected and tragic losses and other traumas. (I am the poster child for fibromyalgia, which is thought to develop as a result of one major physical or emotional trauma, or repeated ones. I'm in on all counts.) Sometimes I need to acknowledge the shit.

I need to acknowledge that my life sucks right now and that the non-sucky part is still somewhere past the horizon and that it's quite possible that my life is going to suck even more in the very near future unless a series of miracles occur.

To me, being positive in the face of these things or, even worse, about these things is like saying they don't matter or they aren't real. It's unrealistic and irrational. Bad stuff must be acknowledged. Pain and fear and the very real possibly of going stone broke — even having spent my jars of coins on food — is right before my eyes. I can see it. That's not being pessimistic, that's being rational.

Acknowledging the bad doesn't give it extra power. I think that ignoring it gives it power; the power to overwhelm you because you were so busy positively ignoring it that all the realistic things you might have done you didn't.

Sometimes, when I'm trying to be all bright and hopeful and positive, I'm really on the edge of tears.

This has been my life. This is my life. If things entirely out of your control repeat in your life, is that a lesson? If so, mine appears to be that life is about pain and helplessness that slowly whittle you down to nothing over time.

I guess the main thing I'm trying to say is this: sometimes being positive and pushing the bad stuff aside invalidates the very reality of the bad stuff and the pain that has been happening and that is happening right now. And just because something good happens or I have a good day does not negate everything else that continues to be Not Good in my life. I've been doing all that I am able to do, from when all I could do is crawl out of bed in the morning and back into it in the evening until now when I can wash my breakfast dishes as well. I have not been capable of looking for a job in an organized or energetic or even useful manner if at all, so no money is coming in. All the affirmations and visualizations in the world have not brought me money through other means (bequests, lottery tickets, philanthropy, whatever). Reality says that if I don't become stone broke in the next 6 weeks, then I'm going to miss it by only a hair and that missing it might as well be luck.

So, this being positive thing. Don't take it to extremes. Doing so feels disrespectful and invalidating. I rather need some validation now and then throughout this terribly shitty time. I need some now. Just because I can manage a smile doesn't mean I'm not in hell.

Tuesday, July 26, 2011

Life Changer


A "lifelong, chronic condition." "Like any other disease." 

Oh my fucking god. No one has ever expressed this concept to me. All these years, depression has been something that happened to me, or that I let happen by not stopping it in time. It was something that came and went, often for no discernible reason. And I've always wondered why it keeps happening to me. Why do I keep getting depressed?

Because clinical depression is a chronic condition, like my fibromyalgia. Neither of them currently has a cure or even a known cause, just surmises and theories. But the depression, like the fibromyalgia, needs to be treated and I need to stay on top of things that may trigger an event. Looking at it this way, I can handle it. 

I know how to handle my fibro (and I haven't been doing so well, but I think the heat and sun are providing balance against the lack of exercise), and I have to take a regular med to keep it under control. I know the warning signs of a fibro event (and I am thankful that I haven't had a major one in years). If I can stay on top of the fibro, I can stay on top of the depression. (You have no idea how difficult it was to type that sentence without any modifiers such as "I think I can stay on top" or "I can probably/most likely" stay on top.)

For example, if I overexert myself, do something physical enough to cause extreme fatigue, then I will suffer from this fatigue for a few days. I know that fibro makes me become more tired faster than other people, and it takes me much longer to recover from fatigue. Strong emotional events or highly stimulating events (such as going to a crowded festival or concert) have similar effects. And if I keep going and don't attend to my health needs and the signs from the fibro, I could end up in bed for days and barely able to move for weeks.

So how does this translate to the chronic condition of depression? Well, I didn't have a lot of options this last time, what with grief and exhaustion and all that I had to do. I got hit with a sledgehammer and there was no way around it. But I'm coming out of it, here and there, so I have the opportunity and the mental and physical capacity to examine this condition and learn how to keep it under control in the present and the future.

Like with the fibro, keeping myself healthy will have the greatest benefit for my mental condition. If I eat well, I'll have all the right nutrients and chemicals roaming around in my body and brain. If I exercise regularly (take walks, do a few body strengthening exercises, do some yoga), I'll get endorphins and keep the fibro pain down — pain can trigger depression, which is why fibro and depression are such close companions. And probably one of the most important factors in controlling the depression: do what I love to do. Write. Draw. Make things. Play. Dance. Maybe the effort it takes to completely inhibit my creative aspect causes depression because it takes so damned much mental energy!

There. This whole idea is going to roll around in my mind for weeks now. Always before when I've been told ways to get out of depression, it seemed like guessing. And besides, it always came back. Well now I see it from a new perspective and suddenly everything looks different. As a visual person, I can tell you everything literally looks different. As a tactile/kinesthetic person, I can also assure it that it all feels different, too, as if the texture of everything around me — even the air — has changed.

I'll probably go on about this in the near future. A lot. So you've been duly warned. Now I need to go watch the marbles roll around inside my skull.